I have been feeling a little gunky emotionally lately. New tough time of year, I guess. I have been so busy thinking about what happened last year that I am scaring myself.
People used to comment on how, during the worst of it, I was keeping my spirits up, that I had an optimistic attitude, and I was relying on God to see me though the bad days and bad moments. To my thinking that was because I was making the choices to do those things. I didn't want to get lost in fear and despair. It was like a big hole in the road that I could either go into or go around.
There are many different kinds of falls-economic, mental, physical & spiritual.I was labeled a "Fall Risk" the first time I went to the hospital for what was eventually diagnosed as Chronic inflammatory demyelinating polyneuropathy, a progressive, auto immune disease.In a few weeks, I went from healthy to being an invalid and eventually almost completely paralyzed. With the help of God, loving family and friends, and modern science, I have begun to recover.
Showing posts with label good news. Show all posts
Showing posts with label good news. Show all posts
Thursday, March 3, 2011
Tuesday, February 15, 2011
Sunshine and Unicorns
Today is more than just a good day; the weather has been kind, permitting me to go about outside in the (semi) warm air and sunshine. Plus, I have more energy than I've had in a long time. It is a great day.
I picked up my ankle-foot orthotics yesterday. I am still a little uncomfortable with them, but I know that is just until I get used to them. They have been very helpful. I had them on for about two hours today while I went grocery shopping and I was amazed at how much of a difference they make.
There was more that I wanted to share, but I am tired, so it is off to Napland.
Tuesday, February 8, 2011
Monday's update
As always, my appointment with Dr. Boughaba had an anxiety relieving effect. I consiuder myself very fortunate to have found her. We talked about finding a new neurologist in Statesboro and she is willing to help with the search. That was a big relief because I hadn't been able to find any neurologists there that specialized in CIDP like she does.
Chronic inflammatory demyelinating polyneuropathy is not a progressive illness, it is an intermittent condition. She was concerned that I might be having a flare up when I told her about feeling more fatigued lately and off balance more. She proposed extra IVIg treatments for now.
Chronic inflammatory demyelinating polyneuropathy is not a progressive illness, it is an intermittent condition. She was concerned that I might be having a flare up when I told her about feeling more fatigued lately and off balance more. She proposed extra IVIg treatments for now.
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