Showing posts with label anniversary. Show all posts
Showing posts with label anniversary. Show all posts

Tuesday, May 1, 2012

Second Anniversary

This is me, two years ago.  Last year I was jubilant.  Not so much this year.  I have noticed that I am continuing to get stronger (yay!) physically.  Mentally, I am struggling. I wrote some poetry last week and posted it on another blog. When I went back to reread it, I realized that I am a really angry man.  I keep thinking about those days and weeks in hospitals.  In other news, it has been a long time since my last IVIG.  That means I am going to start getting off of the Cellcept and if that goes well, Prednisone.  

And after another prescription SNAFU, I have decided to get a new doctor.  I am waiting to hear back from some one from church recommended.


Sunday, March 18, 2012

If the thunder don't get you, then the lighting will

Tomorrow is the second anniversary of my first hospitalization and since anniversaries are significant, I haven't been able to think of little else this weekend.  I have been grieving my old like, my pre-disability life horribly;  I miss bending over to get something out of the cabinets, walking in a straight line, etc.  Lately, when I think about those early days, I am gripped with horror.

Before CIDP,  I lived my life swinging from pollyanna to panic. I spent half of my life telling myself that I would be lucky and escape the tumult and turmoil others had.  When I wasn't telling myself that, I was paranoid, crippled with fear that the opposite would turn be true.

Saturday, March 19, 2011

Celebration

My wife is at home, in bed with the lu.  Me?  I'm out enjoying the sunshine, walking the dog, hanging out at the coffee shop; I put air in my tires and pedaled up and down the street this morning.  I would not call it "riding" just yet, but it is the direction I would like  to be going.

I went into the hospital for the first time one year ago today.  I feel pretty good right now.  

I don't take this milestone lightly; The trip from March19th, 2010 to today was challenging.  I didn't do it alone, and to the friends, family, fellowship members, and strangers who were part of that journey, thank you.  The experience would a lot more hellish without you.


This is your day to celebrate too.