Wednesday, September 29, 2010
Saturday, September 18, 2010
|I worry that I don't have enough computers|
Saturday, September 18 th, 2010
Monday, September 13, 2010
Many times,since I got sick, direct communication has been to much for me; even the phone has been a challenge. The Internet has been a huge blessing. Talking via chat or Email has kept me from being a total recluse.
I've also had a chance to watch some great movies through HULU, YouTube and Netflix.
I hope it won't be too long before they get it fixed. Until then,
Friday, September 10, 2010
Telling my therapist it’s a bummer to be reminded that I can’t walk wasn’t my way of being discouraged, it was my way of being brave. Bravery is another component of happiness. When I lack that bravery, as I often do, my Higher Power draws me close and reminds me that I am not alone. As long as I trust Him, I will be all right.
* Source: on the web, this is attributed to an Indian proverb, but I am not sure there are lions in India and I'm too tired to double check.
Saturday, September 4, 2010
Have a happy and safe Labor Day, from someone whose every day is Labor Day. I am writing this from a booth at Kofenya, my favorite place to spend a Saturday morning.
Yesterday was my first outpatient physical therapy. My physical therapist looked at me with a fresh perspective; she doesn't see how far I've come, she sees how far I need to go. What's the advantage of being able to walk if I can only go from my living room to the bedroom?
Our plan is to work on building up my strength and endurance. She noticed that when I walk, I use my hips for most of the motion. I still don't have much activity or control from my knees down. We will work on using the muscles I have the most control over to improve my walking.
She also made it very clear that she expects me to work on these at home.I will feel I 've really earned these gains.
I had my second IVIG made into dose last week and it went very well, I spent the day watching movies. I also reduced my steroids by 5 mg this week. My physical therapist will help to monitor if my CIDP symptoms return. That is a relief.
Adrienne and I began going to the Corwin M. Nixon Aquatic Center on campus. There is a family/handicapped accessible changing room that is very spacious and equipped with grab bars. Unfortunately they did not install an automatic door opener, and I'm not sure I could open the door from the inside on my own. Being trapped is a great fear of mine.
After we get changed, we roll out to the pool and I transfer into the lift. It is easy to operate and I can use it alone. Once I get into the water I support myself by holding the wall or holding on to Adrienne.
Time to eat my breakfast.