Second Anniversary

This is me, two years ago.  Last year I was jubilant.  Not so much this year.  I have noticed that I am continuing to get stronger (yay!) physically.  Mentally, I am struggling. I wrote some poetry last week and posted it on another blog. When I went back to reread it, I realized that I am a really angry man.  I keep thinking about those days and weeks in hospitals.  In other news, it has been a long time since my last IVIG.  That means I am going to start getting off of the Cellcept and if that goes well, Prednisone.  

And after another prescription SNAFU, I have decided to get a new doctor.  I am waiting to hear back from some one from church recommended.

A Simple test

I discoivered a great test to find out if I am being listened to; If the person speaking to me continues to talk after I have told them I agree with them, they have not been listening to me.  I asked my new doctor for a percocet refill, he agreed.  When I told him my last doctor had wrote a 90 day prescription, he freaked out and began to lecture me on why he refused to do that.  I never asked for a 90 day supply, my old doctor gave it to me and being new to the community of prescription narcotics consumers, I thought nothing of it.  I certainly don't have a problem with doing it monthly and I told this guy that, but he continued to lecture me about the inapropriateness of asking for a 90  day prescription.

And when all was said and done, he doubled my dosage.  What a jack ass.

Good Days, Bad Days (You know I've had my share)

I've been listening to plenty of Led Zeppelin lately.  Not sure why.

Just so everyone knows, this is a bad day (actually, several bad days).  I am tired all the time, but can't sleep and I am in pain.  Nights are the worst.

I  have been so busy working on the physical therapy aspect of my recovery that I forgot I have a chronic illness that I know almost nothing of, especially how it manifests itself  after the initial symptoms abate. 

So I am taking it to the Internet: