Monday's update

As always,  my appointment with Dr. Boughaba had an anxiety relieving effect.  I consiuder myself very fortunate to have found her.  We talked about finding a new neurologist in Statesboro and she is willing to help with the search.  That was a big relief because I hadn't been able to find any neurologists there that specialized in CIDP like she does.

Chronic inflammatory demyelinating polyneuropathy is not a progressive illness, it is an intermittent condition.    She was concerned that I might be having a flare up when I told her about feeling more fatigued lately and off balance more.  She proposed extra IVIg treatments for now.

Good Days, Bad Days (You know I've had my share)

I've been listening to plenty of Led Zeppelin lately.  Not sure why.

Just so everyone knows, this is a bad day (actually, several bad days).  I am tired all the time, but can't sleep and I am in pain.  Nights are the worst.

I  have been so busy working on the physical therapy aspect of my recovery that I forgot I have a chronic illness that I know almost nothing of, especially how it manifests itself  after the initial symptoms abate. 

So I am taking it to the Internet: