I am going to share something that is really personal with my (subscribed) readers, I don't want this to appear on my facebook page because I have to associate with those people in real life and I don't want them to know.
All my life, at least since I discovered EA Poe (in second grade!), I have wanted to be a writer; the kind of writer whose words on paper will make the reader's blood run cold in terror. I started a new blog for that kind of content. There will be no witty, carefully structured commentary on popular culture or delightful anecdotes about my personal growth as I strive towards acceptance of my new life as a professional invalid.
I am calling that blog Samples, although I don't know why. I hope that some of you will take a peek at it, although there isn't much there right now. This is a very personal anecdote I wrote for here, but didn't publish because of the personal nature of it; you may not want to read it. If you do, it has plenty of warts and I am betting your thoughts would be very constructive.
Until then, this has been stuck in my head since last Thursday's 30 Rock.
There are many different kinds of falls-economic, mental, physical & spiritual.I was labeled a "Fall Risk" the first time I went to the hospital for what was eventually diagnosed as Chronic inflammatory demyelinating polyneuropathy, a progressive, auto immune disease.In a few weeks, I went from healthy to being an invalid and eventually almost completely paralyzed. With the help of God, loving family and friends, and modern science, I have begun to recover.
Sunday, April 29, 2012
Monday, April 9, 2012
Losing a Pet
Sunday, March 18, 2012
If the thunder don't get you, then the lighting will
Tomorrow is the second anniversary of my first hospitalization and since anniversaries are significant, I haven't been able to think of little else this weekend. I have been grieving my old like, my pre-disability life horribly; I miss bending over to get something out of the cabinets, walking in a straight line, etc. Lately, when I think about those early days, I am gripped with horror.
Before CIDP, I lived my life swinging from pollyanna to panic. I spent half of my life telling myself that I would be lucky and escape the tumult and turmoil others had. When I wasn't telling myself that, I was paranoid, crippled with fear that the opposite would turn be true.
Before CIDP, I lived my life swinging from pollyanna to panic. I spent half of my life telling myself that I would be lucky and escape the tumult and turmoil others had. When I wasn't telling myself that, I was paranoid, crippled with fear that the opposite would turn be true.
Tuesday, February 28, 2012
Excessively Moderate
Monday, February 6, 2012
Stressing
My stress test is tomorrow at 7:45. I kinda think that the end result will be my doctors telling me to eat better and exercise more. I still feel lazy if there is something I don't get done in a timely fashion. Leaving things half done never bothered me before I got sick, ask Adrienne.
I am curious to see if I have lost any weight. More on that later
I am curious to see if I have lost any weight. More on that later
Thursday, February 2, 2012
Weighty Issues
Thanks to David for explaining it is called a Holter, after the person who invented it, not halter, like I thought.
Yesterday I ate 67% of my daily allotment of calories, if I was accurate in recording them. Basically, I ate whatever I wanted to eat, provided I was willing to record it. That extra step, the recording, really slows me down.
Yesterday I ate 67% of my daily allotment of calories, if I was accurate in recording them. Basically, I ate whatever I wanted to eat, provided I was willing to record it. That extra step, the recording, really slows me down.
Wednesday, February 1, 2012
Further Updates
I dropped off the halter this morning, the n went home to take off the electrodes. Ouch! I told the young woman that was putting them on to shave me first and I guess she only half listened.
Oh well, half is better than none.
In other news, I now weigh 272 pounds, about 50 over a healthy weight, according to my doctor. In order to help lose the weight, I got a calorie counting app for my to help. I put in my present weight, then my ideal weight and pick a plan on how fast I want to lose the weight (I picked the most gradual), and the program does the rest. As long as I am honest with my phone about what I eat and don't go over the limit, I should be at my ideal weight in about half a year.
This is going to be hard because I really don't want to face my food addiction.
As of 10 am, I have eaten 24 % of my daily calories.
Oh well, half is better than none.
In other news, I now weigh 272 pounds, about 50 over a healthy weight, according to my doctor. In order to help lose the weight, I got a calorie counting app for my to help. I put in my present weight, then my ideal weight and pick a plan on how fast I want to lose the weight (I picked the most gradual), and the program does the rest. As long as I am honest with my phone about what I eat and don't go over the limit, I should be at my ideal weight in about half a year.
This is going to be hard because I really don't want to face my food addiction.
As of 10 am, I have eaten 24 % of my daily calories.
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