Second Anniversary

This is me, two years ago.  Last year I was jubilant.  Not so much this year.  I have noticed that I am continuing to get stronger (yay!) physically.  Mentally, I am struggling. I wrote some poetry last week and posted it on another blog. When I went back to reread it, I realized that I am a really angry man.  I keep thinking about those days and weeks in hospitals.  In other news, it has been a long time since my last IVIG.  That means I am going to start getting off of the Cellcept and if that goes well, Prednisone.  

And after another prescription SNAFU, I have decided to get a new doctor.  I am waiting to hear back from some one from church recommended.

A Simple test

I discoivered a great test to find out if I am being listened to; If the person speaking to me continues to talk after I have told them I agree with them, they have not been listening to me.  I asked my new doctor for a percocet refill, he agreed.  When I told him my last doctor had wrote a 90 day prescription, he freaked out and began to lecture me on why he refused to do that.  I never asked for a 90 day supply, my old doctor gave it to me and being new to the community of prescription narcotics consumers, I thought nothing of it.  I certainly don't have a problem with doing it monthly and I told this guy that, but he continued to lecture me about the inapropriateness of asking for a 90  day prescription.

And when all was said and done, he doubled my dosage.  What a jack ass.

Monday's update

As always,  my appointment with Dr. Boughaba had an anxiety relieving effect.  I consiuder myself very fortunate to have found her.  We talked about finding a new neurologist in Statesboro and she is willing to help with the search.  That was a big relief because I hadn't been able to find any neurologists there that specialized in CIDP like she does.

Chronic inflammatory demyelinating polyneuropathy is not a progressive illness, it is an intermittent condition.    She was concerned that I might be having a flare up when I told her about feeling more fatigued lately and off balance more.  She proposed extra IVIg treatments for now.

Good Days, Bad Days (You know I've had my share)

I've been listening to plenty of Led Zeppelin lately.  Not sure why.

Just so everyone knows, this is a bad day (actually, several bad days).  I am tired all the time, but can't sleep and I am in pain.  Nights are the worst.

I  have been so busy working on the physical therapy aspect of my recovery that I forgot I have a chronic illness that I know almost nothing of, especially how it manifests itself  after the initial symptoms abate. 

So I am taking it to the Internet: