Anniversaries

This was me, a year ago.

God is good.

I've given myself permission to spend today in bed, even though it looks great outside and the temperature is (relatively) cooler.  Tomorrow is  my first IVIg in 31 days.  This is the longest I have gone between infusions so far.

I am not sure if that is why I feel so rotten (really tired, lots of pain, unsteady on my feet) or if there is another reason.  When I had the flu last December, it took months for me to recover; it is plausible that my exhaustion might be left over from the move.

I feel guilty about wasting a beautiful day like today.  But the idea of doing what I need to to do get out there is beyond my capabilities right now.  Good thing Alex is here to drain the dogs.

Hot Enough?

Yes, it is really hot here.  Despite my reluctance to pay attentiuon to anything newsy, I guess the rest of the United States is also really hot.

Like unbelievably hot.  Yesterday, at 10 am, it was already 100 degrees in downtown Statesboro.  It was still 100+ at 7 pm, when we went into the Averitt Center to watch Hairspray.  Sitting in the Statesboro Regional Library it is 95.

Wow.

I am constantly amazed when I talk to friends not from the South how much they sound like I have moved to another country.  They do speak American here.

On a personal note, it have been 25 days since my last IVIg infusion.  Adrienne says I am deteriorating and I have to take her word for it; my exhaustion has reached new levels and I feel clumsier than I have in months.

In other news, my re-walking anniversary is next week.  What a celebration!

Georgia-Land

We have made it to Statesboro after visiting with my sister in Kentucky and then a long and gorgeous drive into the South.  I still feel pretty disoriented, but it is getting better.  Little things like getting a library card, Internet access and meeting my new neurologist, Dr. Patel (another transplant, I think) help.

Counting the days

We are packing, getting ready for our move to Statesboro, Georgia.  Once again, I am going to rely on Alex (and anyone else I can grab) to do the heavy lifting.

Neither Oxford nor Statesboro are really my home.  When I do go to my real home, I am sure I won't miss either one.  In the mean time, I am having a hard time saying good-bye.  There is so much here, so many people, that I love.  Moving, however, might put them out of my life and that makes me sad.

Usually when I leave a place, I feel like I feel like a criminal, sneaking away.  Actually, that has been true in the past.  The fact that I am going to miss being here, instead of being grateful to have gotten out in time, is proof that I am not the person I used to be and I celebrate that change.  I am pretty sure that I won't look at this time here (as opposed to my college years) with regret for the bad decisions I made.

I am done with my coffee, I need to get back to work.

How Mom and Dad Met

Dad, me, in 1967 on Grandpa Nota's riding lawn mower

Spring, 2007, one of the last times I saw him before he died,   I asked Dad how he and Mom met. We were sitting in the kitchen at 1 Pitt Street. While he talked, I took some notes.  This is the story he told me (as well as I could reconstruct it):

Dad's parents in front of their home  in Neffs, Ohio      

My father, Robert James Williams, was born May 10, 1920 in south-east Ohio.  I am not sure what town he was born in, but his family settled in Neffs, Ohio, a small, rural coal mining town.  At an early age, Dad exhibited one of his major character traits; he was a hard worker who never liked to sit still.  To help out with family expenses, money being short during the Depression, he grew vegetables and raised rabbits to sell.  Between 1936 and1939, Dad would work second shift in the mines, after going to to school during the day. During the summers, he and his brother Jack traveled around the country, getting free train rides by hiding in empty box cars with other men looking for work.  One summer he traveled as far as Texas, finding work herding sheep.  

In 1939, he quit school to work full time in the mines. He told me about the Willow Grove Mine explosion, which happened on March 19, 1940.  He was off that day, but  heard the explosions at home.  He spent days clearing the rubble and removing the remains of those trapped in the mine, including close friends he had known his entire life.  

Hazy, hot and humid

It is amazing how fast the seasons changed from cold, rainy and damp to hot and damp.  Living in an unairconditioned house is an endurance test.  Wearing long pants is insane.


I took a long walk yesterday before it got too hot. I have been struggling with wearing shorts and my ankle-foot orthotics. It is humiliating to expose them this way: the alternative would be to stay home or wear long pants.  


While walking, I had an epiphany: I was the one putting limits on me, not my CIDP. My desire to hide my AFOs was restricting my activity level when they are supposed to do the opposite. Wearing them means I can walk almost as fast and almost as far as I used to be able to walk.


What is the matter with me? Like anyone is going to care that I have these things on. 


 Like I care what anyone else may think about me wearing them.


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